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It's so vividly writte...Oh, this was hard to read. It's so vividly written, and although I literally LIVE this EVERY. DAY. with my own terrible-two year old, it hurt to feel your pain.<BR/><BR/>I had to walk away from the computer during the paragraph about not finishing the Pulmozyme and leaving her to finish the vest alone...my Lord how many times have I been there.<BR/><BR/>And begging her to take just a few bites. Yeah, I'm there with you two. The pressure to gain weight is SO huge. And, I feel helpless, because she JUST won't eat.<BR/><BR/>We have the constant battles, all day, every day. It's been this way s\ince she was 18 months old. Luckily, Emily rarely resists vest or nebs, now (she used to). But, if I pick the wrong shirt, or the wrong cup, or if I do something that she thinks she should do "all by myself" she screams like no child has ever screamed before. Honestly. The red face, the blue lips, the shaking, the balled fists…it is a scary sight when she gets angry. I keep waiting for a tiny green “Hulk” to emerge from one of her fits.<BR/><BR/>I have been told a thousand times by my mother, by the NP at the clinic, by mommy-friends, by adult cf'ers that this spunk and fight is good. It's what will get her through. It will make her a survivor. And, they're probably right. But, I worry. What if it never goes away? <BR/><BR/>*sigh*<BR/><BR/>It's so hard some days. And, DH and I have different approaches, so I hear you about the stress. And the lack of communication.<BR/><BR/>I have no advice. But, I wanted to let you know that you are so very not alone. And, to thank you for posting this. It helps, even if it hurts, to hear it in someone else’s words!<BR/><BR/>Tami<BR/>mom to Emily,Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33629869.post-26762248442068051912008-06-17T11:53:00.000-07:002008-06-17T11:53:00.000-07:00I am soooooooo with you on the tantrums! No kiddin...I am soooooooo with you on the tantrums! No kidding, the ones we're experiencing have sent us to seek professional help (parenting, not psychiatric ..... yet). I won't pretend to know how you feel with the health aspects on top of things, but strictly from a Mom-and-Terrible-Tyrant-Toddler perspective, I feel your pain, Mama!<BR/><BR/>And don't beat yourself up for exploding. I think I could beat you to the Worst Mother of the Year award pretty easily. You know you must be awful when your child looks at you and says 'I want to shout at Mommy and then Mommy cry too'. Guilt, guilt, guilt, guilt, guilt.......<BR/><BR/>XOXOXOXOXO from your partner in parenting pain!The DutchMac Tribehttps://www.blogger.com/profile/01108463221404795234noreply@blogger.comtag:blogger.com,1999:blog-33629869.post-26482034101003007842008-06-16T20:27:00.000-07:002008-06-16T20:27:00.000-07:00Oh, my, I wish I knew what to say. I know those d...Oh, my, I wish I knew what to say. I know those days are probably coming. Maybe she'll have a short course of terrible twos.Beverlyhttps://www.blogger.com/profile/07269872465115056916noreply@blogger.comtag:blogger.com,1999:blog-33629869.post-18357990492026893362008-06-16T16:51:00.000-07:002008-06-16T16:51:00.000-07:00Thank you, thank you, thank you.Thank you, thank you, thank you.Froggymamahttps://www.blogger.com/profile/14051203832854456063noreply@blogger.comtag:blogger.com,1999:blog-33629869.post-85853758971899782092008-06-16T16:30:00.000-07:002008-06-16T16:30:00.000-07:00Love, love, love, love, love, love, love, love, lo...Love, love, love, love, love, love, love, love, love, love, loveLove, love, love, love, love, love, love, love, love, love, loveLove, love, love, love, love, love, love, love, love, love, loveLove, love, love, love, love, love, love, love, love, love, loveLove, love, love, love, love, love, love, love, love, love, loveLove, love, love, love, love, love, love, love, love, love, loveLove, love, love, love, love, love, love, love, love, love, loveLove, love, love, love, love, love, love, love, love, love, loveLove, love, love, love, love, love, love, love, love, love, lovevLove, love, love, love, love, love, love, love, love, love, loveAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-33629869.post-38776190275260260132008-06-16T13:46:00.000-07:002008-06-16T13:46:00.000-07:00Ugh! I feel your pain! Max didn't get his vest u...Ugh! I feel your pain! Max didn't get his vest until he was 2 1/2, but he'd act similarly during CPT. I'd practically stand on my head trying to entertain him. He'd cry, I'd cry. And when we finally got his vest I'd have to wrestle him into it and he'd thrash about --- tell me that he HATED vesty. <BR/><BR/>I felt (sometimes still feel), like a terrible parent and was often tempted to run away from home or run out the door screaming. I was once driving a few miles out of town to the vet clinic and just thought during a moment of madness that I could just keep driving down the freeway. <BR/><BR/>As for eating... I just have a tough time wrapping my head around the idea that a relative of ours could care less about food. I swear he's an alien at times 'cuz who in their right mind would turn down cookies, cake, french fries.... <BR/><BR/>Our saving grace was a video gaming system last year. Kept his mind occupied to the point that he ASKED to do vest treatments more often. <BR/><BR/>I wish I had some advice. Just know that you're not alone.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33629869.post-82899254198927814182008-06-16T13:02:00.000-07:002008-06-16T13:02:00.000-07:00Hug hug hug hug!!! I am so sorry - you sound comp...Hug hug hug hug!!! I am so sorry - you sound completely spent and at the end of your rope. I have moments/days like that and I don't have to deal with even a quarter of all you do. I can only imagine how it can build up and take a toll.<BR/><BR/>I wish I was closer - I'd be there in a heartbeat to help with whatever I could.Caseyhttps://www.blogger.com/profile/15543461344197186456noreply@blogger.com