Friday, April 30, 2010


Ten years ago today FD and I had our first date.

We met at Venice Beach and walked and walked and walked, all day.

We sat at the drum circle while the sun went down. A man from Africa approached us, put his hands on our foreheads and said a blessing. He had the most incredible smile. I will never forget his smile. He was one of those people who seemed to float above the earth and just illuminated goodness. He was a stranger, but we felt honored that he chose us out of everyone. We were singled out. We were invincible.

It was a magical day. It was the beginning. It's hard to remember that day without an overwhelming sadness, to think about how little we knew, how life would change us, how we would one day become different people.

I was so innocent. I believed like most 22 year olds that anything was possible. I don't know, I still feel that way at 32, that anything is possible. I am always hopeful, concentrating on that thread, that tiny thread of hope, where the fabric has worn away, washed away in waves and sunlight. It's there, stuck in the sand, under layers of rock and clay just waiting to be dug up, to see another sunset and listen to the sounds of drum beats in Venice beach.

Monday, April 26, 2010

New Great Strides Video

What's that? You say you want to donate to team Froggy's Legs, so that Froggy can live to 100? Well you're in luck!

Here's our NEW and improved Froggy photo montage, just click HERE.

And to donate those big bucks for the cure, click HERE! Woo Hoo!

Friday, April 16, 2010

The Bright Blue

The Bright Blue
by Froggymama

Pushing this boulder up
a mountain.

it tumbles
over me.

I'm not a quitter. I start
at sea level, hoisting

that huge rock out of the river bottom. I thought,

if only it could see light, it would know

what it was missing. If I could just push
it to the top overlooking

the world it would know

what I was worth.

ten years later here
I am

broken to bits

looking up at the heavens
the bright blue

asking 'now what?'

G-tube Progress

Froggy gained 3 pounds!!! In three weeks!

Considering she gained barely a pound in one year, this is incredible.

Her appetite isn't the best, but she's gaining weight, so I'm not complaining. Woo hoo! She's doing great.

Tomorrow is CF Education Day at the hospital. I can't wait to report the progress! xoxo

Wednesday, April 14, 2010

Tuesday, April 13, 2010

Another Good Poem from The Writer's Almanac


by Philip Schultz

The God of Loneliness: Selected and New Poems

This morning I'm tired of the same newspapers and arguments.
I'm tired of sticking the same legs into the same pants,
the same hands poking out of the same sleeves, going west
and then east, heating up the same tea, watching the same sun
rise over the same horizon, the same trees shedding the same leaves.
Tired of climbing the same stairs to look out the same window
at the same street, tired of shaking the same hands, opening and
closing the same doors, dreaming the same dreams, saying hello
good morning happy birthday I'm so sorry please forgive me.

"69" by Philip Schultz, from The God of Loneliness: Selected and New Poems. © Houghton Mifflin, 2010.