Wednesday, November 04, 2009


I've been reading Lauren's blog for years -- shortly after Froggy's diagnosis. Her kindness, faith and strength has been such a gift. She died yesterday. She was only 29.

I hate this disease.

I didn't know her personally, but it was so clear in her writing what a lovely and intelligent woman she was, how much she had to offer the world, and other families dealing with CF.

It seems only fitting that when I read her blog and her husband wrote that she passed away, my breath was taken away. I couldn't believe that someone so young, so kindhearted, could be taken, just like that. That is the reality of Cystic Fibrosis. This is why we must fight so hard for a cure.

Lauren, I hope you are breathing deep breaths of love tonight, as you leave the body that failed you, to find the weightlessness of being at peace. Your faith and trust in God has been an unreachable goal of mine, to find the certainty that you have, the absolute knowledge that even when we come to the end, we find a beginning. For the little I knew of you, I loved. And I know you of all people have found what you were looking for.

If you'd like to leave a kind word for her family,
click HERE.

And if you'd like to make a donation in her name, to the CF Foundation, please click HERE.

I'm going to go into the bedroom and hug and kiss my Froggy like I never have before.


holly said...

It's just not fair. I hate this disease. We will find a cure.

Beverly said...

My heart is broken. I think we all felt the same way about Lauren. She too was one of the first people I came in contact with after Ella was diagnosed, and what a help she was.

Anonymous said...

Since reading about Lauren on your blog last week, and posting about Grégory Lemarchal, who died aged 23 years, 11 months and 15 days, waiting for a lung transplant, I have been upset at the terrible toll of this disease. I am so very sorry to learn about Lauren.

The cure is coming, but please let it get here soon!

You and Froggy are in my thoughts.

There is a posthumous Grégory Lemarchal song being released entitled "Je rêve" ("I dream"), featuring 6 people with CF who have had lung transplants.

The lyrics speak of "...dreaming of flying in the face of the wind/It has been so long that we have thought/That we would so love to have a chance..."