I had actually forgotten what it looked like to see Froggy putting food in her mouth. She's been snacking and drinking milk, but not eating meals.
Today, she had her supplement/milk for breakfast then a big lunch and a big dinner! And this is probably too much info, but she also had a big poop. I know, I know.... but this is a huge deal when your kid stops doing those basic functions we all take for granted.
I emailed Froggy's neurologist, and there really isn't an alternative seizure med, so we'll stick with the Lamictal and hope her body adjusts. In the meantime, FD and I are waking up a couple times a night to give her a milk/supplement to help add some weight to our skinny minnie!
Froggy, FD and I played hookie today and walked down to the Santa Monica Pier for a ride on the carousel. It was another gorgeous day in California-land. And Froggy was an ANGEL for her first Tobi treatment tonight. Whew. I love this kid!
Since her treatments are so long now, I bought a bunch of 99-cent store presents, and when she finishes a treatment, she gets to reach in a bag and pick out a toy. So far it's working. I realize bribery isn't the best parenting tactic, but how DO you keep a three year old cooperative for two hours a day? I'm also renting/buying videos to keep her busy for the long antibiotic haul. Wish us luck! I am soooo pumped for knocking out these nasty lung bugs!!! We want Froggy's little lungs to be perfect when the cure comes!