I'm having a hard time tonight. A little girl named Anna (with CF) just died this week - she was only eight years old. And I stupidly looked on the "In remembrance" forum of the CF website and was just horrified at how young everyone was. Seven, eight, eleven, thirteen, twenty-two. I hate this disease. When I look at the numbers, at how early kids are taken, I just can't handle it.
I look at Froggy and can't see her any other way but healthy and vibrant, running and happy. I don't want to. I can't imagine losing a child. I can't imagine what those parents go through. I never want to know. Sometimes it's just too much. I just can't stop crying for Anna's family.
11 comments:
Oh no, I'm crying for all of you as well. Anna's family for what they're going through, your family for what you hopefully will never have to go through.
Your job is to keep seeing your daughter as the healthy and vibrant girl you currently see. There's a lot to be said for sending out positive energy, and besides, Froggy deserves to be seen in that way. And you deserve the joy that comes with living in that vision.
xoxoxoxox
That is so awful. I'm so sorry to read this. I can't imagine what you parents of children with CF go through everyday. My heart goes out to all of you.
I have no words. Just bunches of love and hugs and support.
Through this blog I have come to love Froggy and you very much. You are ALWAYS in my prayers.
That just breaks my heart. I am thinking of you, I'm sure this stuff comes in waves and it must feel like a gigantic emotional roller coaster.
she'll be a wonderful and old sailor, love!
I'd heard about her on a cf site and then watched a newscast on youtube about her life and death. It was so heartbreaking.
And also so terrifying as a parent of child wcf. Her parents didn't expect this to happen so soon, did everything they could to keep her healthy...
I hate this. Liza
I have no words. I weep every time I read about the difficulties CFers have, and especially when one this young dies.
She is in perfect health E. She's thriving. You do such a wonderful job. Our baby is going to live a long long life. You know she will. I know you are scared my love. I know. You are allowed to sob and let all of that fear and exhaustion that you do not allow yourself the time to feel out sometimes. It's good to let it all go and regroup. I love you E. I love you. I love you. So many of us do. We're standing right beside you as always. Focus on the stories about the woman with CF who is a lawyer and just gave birth to her third child. Focus on that.
crying with you.
awh...so hard and sad to read about that. makes me sad. like casey says...i have no words. my heart goes out to you. somehow someway- i can't help but think with the stem cell research back on that super froggy and you her mama are going to overcome cf. i don't mean to sound naive. i really mean it. jcn
This is, again, an over-due and out of date comment...but I sobbed and just couldn't get Anna off my mind for days, too.
I forget, sometimes, that the CF we fight every day is the same damn CF that kills. It's inconcievable...my daughter is healthy, vibrant, alive...how can it be?
Hug Froggy tighter tonight...and an extra hug from Emily and me.
Post a Comment