Friday, January 09, 2009

A Big Week

It's me Debbie Downer Again!

Monday we had our court date for Froggy's Disability case. Usually the judge decides right there, but nope. She wants more letters from our docs, more medical records, and in general more work from us. Grrr.

Tuesday I started seeing a therapist. That afternoon found out my insurance won't pay a dime of it, unless I've been diagnosed with an anxiety disorder or depression (which could be done), but then the next insurance company would be able to deny any coverage because it would be a pre-existing condition, plus my insurer would raise my rates. Fortunately, the therapist is willing to cut her fees a lot, and hopefully by the time FD gets a job in the hospitals, we'll have better health coverage.

Wednesday we enjoyed a hike with Hummingbird, her Mama and Grandpa J, and then I had book club that night, and Grandma W. babysat. So Wednesday was good.

Thursday we had our appointment at UCLA with a Pediatric Neurologist. He seems great, and the program there is supposedly one of the best. I like our other Neurologist too, so I guess we'll have to make a decision about who will treat her from now on.

Which brings us to today! Friday - I asked for a raise this morning, and signs are good it's gonna happen. Then while rocking Froggy to sleep, her eyes rolled up in her head, and her shoulder twitched.

Her seizures have been under control for the last two months, so this sucks, really, truly sucks. I'll be on the phone with her doctors all day today. I'm discouraged, but just had a gut feeling they were coming back. Her sleep schedule has been out of whack for the last couple weeks, which seems to be an indicator they'll return.

Sorry to be Debbie Downer. The good news is that we have great doctors, Froggy is in wonderful spirits and has been a cooperative and delightful toddler lately (woo hoo!), and it's almost the weekend.

8 comments:

DutchMac said...

I am feeling both your positives and negatives with you. I'm glad you're able to start working with someone as a means to taking care of YOURSELF for a change, even though it may cause a few more headaches. And I'm sorry to hear about Froggy's twitch and your extra hoops with the legal system. I'm cautiously excited about your raise, and optimistic about your doctors.

Just remember there are plenty of people alongside you for every glide of the swing, whether it be forwards or backwards.

xoxoxoxoxoxo

fleetfeet said...

Hang in there. Praying for you. Let us know if there's anything else we can do from afar...

Phoenix's Mom said...

Hang in there! Froggy is lucky to have such a wonderful mom!
Sending lots of hugs and prayers!
Angela

Angela said...

That really sucks about Froggy's seizures possibly returning, I hope her docs can get that figured out soon so you are not constantly on a roller-coaster ride! I am always amazed at all that you deal with on a daily basis, hang in there! And don't even get me started on the disability case, I cannot believe you have more hoops to jump through, so NOT FAIR.

Casey said...

It's hard *not* to be a Debbie Downer when so much piles up. :( I'm sorry. I'm really, really sorry.

Beverly said...

Hi, FroggyMama,
I've been reading, but not doing much in the way of commenting. I'm sorry you're down right now; you certainly have reason. As the others have said, you must take care of yourself.

I think of you often and love reading your posts about your dear Froggy.

Anonymous said...

ergh...sooo sorry. you are an amazing mom and writer. hang in there. jcn

holly said...

Sorry to hear last week was rough. Still can't imagine dealing with seizures on top of CF stuff. You're one tough mama. Hopefully the amazing winter heat wave we're having this week will lighten things up a bit. Hang in there!