Wednesday, January 14, 2009

Seizure Update and Froggyisms

We increased one of Froggy's seizure meds. So far so good. I've noticed her eyes deviating a little, but not today. So knock on wood, cross fingers, pray, do a dance that she keeps improving.

Our new Neurologist suggests we do an all-night EEG at the Pediatric Sleep Clinic at UCLA. He thinks they'll be able to locate from what part of the brain the seizures are coming from, and be better able to medicate. He also suggested that we do another MRI in the future. And he thinks the other seizure meds aren't doing the trick, so eventually we'll add a third one (Lamictal), while gradually tapering off the others.

I do notice that every time we increase her seizure meds, Froggy becomes irritable and more aggressive. Yesterday we had a tough time and it's really tough to discipline when you aren't sure if it's typical toddler behavior or a side-affect. Today she was moody, but cheered up for ballet class and a visit from Grandpa J.

Ballet pictures to come.

A Froggyism or two:

Froggy: Mommy, I need to wash my mouth out.
FM: Why?
Froggy: Cause I bit my tongue.

Froggy is really interested in the contrast between doing something by accident or on purpose. And she's very honest about it. When she's doing something naughty, she'll look up at me and say, "I did it on purpose...not accident."

We received a photo calendar from Aunt H. with photos of Froggy's twin baby cousins. Froggy kept commenting on how cute the babies were. I was trying to work at my computer and said, "Let's be quiet so Mommy can think." To which she replied, "I'm going to think too." She scratched her head like a cartoon character, furrowed her brow and really thought HARD." After a few moments, she said, "I'm thinking about my cute cousins."

Froggy is quick to correct you. For example:

FM: Froggy, put on your hat.

Froggy: It's a hood Mommy.


FM: Do you want to take your bike to the park?
Froggy: It's a tricycle.

And she's quick to finish my thoughts. If I'm stuck mid-sentence and can't remember what I was going to say, she'll finish it. Like..

FM: I can't find my....
Froggy: Cell phone? Keys? Purse?

There are so many other adorable things she says everyday that I fail to write down. I should...

FM: Carry a...
Froggy: Pen around your neck?



The DutchMac Tribe said...

Those are adorable!

Sending lots of positive mojo with the new meds, and hope the MRIs do the trick so this nonsense can FINALLY get sorted out for you guys.


Beverly said...

You and my son and his wife are raising a couple of geniuses (genii) for sure.

Ella is so funny. She talks up a storm and makes up her own words to songs. I do believe God gifts them with something special.

I'll be flying to Virginia in February to see her again...again in April for my son's birthday, and then they need me again in May. Am I lucky, or what?!

Anonymous said...

love these froggyims...jcn