If you haven't had a good cry in a while, find a box of tissues, turn on your volume and watch this video.
After watching the video, be sure to click below to listen to the complete song.
And as always if you feel so compelled to make another donation to CF research, to find a cure so Froggy and her froggy friends can live a long, healthy life, click HERE to donate.
4 comments:
Great video.
I'm sure things are still less than optimal, but it's nice to see the occasional post to know you and the frog are still plugging along.
Yup. I cried. How cool is that site! I had no idea it existed??? Do you know of more?
Hi Holly, I'm on the CF Yahoo Group, and cysticfibrosis.com. They're both good forums, although the Yahoo group tends to ramble on, getting into a lot of off-topic debate. So I don't always read the posts. I also get google alerts for anything pertaining to CF. I tend to get overwhelmed if I'm on the sites too much, and just drop in every once in a while. Otherwise you get inundated with sad news. But both groups are very supportive and loving.
There is a French singer named Grégory Lemarchal; have you heard of him? He won Star Academy in France in 2004 with an astonishing 4 octave range.
This is one of the songs that one him the contest; I don't know whether you understand French, but given his story, it never fails to give me goosebumps.
http://www.dailymotion.com/video/x36r2q_lemarchal-gregory-sos-dun-terrien-s_music
He is the face of CF in France; since his death in 2007, many millions have been raised in his name (in Europe, it is not common to raise money like this). Now, everyone in the French speaking world knows about CF because of him. He had an impressive recording and touring career, a beautiful fiancée (tv journalist), and a voice that only comes around once in a generation.
http://www.youtube.com/watch?v=TzaLljwQhfQ
http://www.youtube.com/watch?v=UwZie_Q7U-k
http://www.dailymotion.com/video/x2pu8p_gregory-lemarchal-je-suis-en-vie_music
He looks a little like my nephew. What a beautiful boy...
oh, the tears..
-monika
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