Read this article.
FD and I have actually discussed this option. Hopefully, it will never come to this.
When FD starts working in June, we will lose CA. Children's Services and Medicare for Froggy.
Without that help, even with his income, we may not be able to afford the high co-pays for her meds. The average cost of medication alone for a kiddo with CF is more than $65,000 a year. So think about that, even a small percentage of $65,000 would wipe us out.
We have no idea yet how her medical coverage will be, so I'm jumping the gun. But obviously, we'll do whatever it takes to get Froggy the best care, without us living in a van down by the river.