Wednesday, October 15, 2008

Naptime is Mommytime

I catch myself looking forward to nap and bedtime, when life selfishly becomes mine again. And that anticipation for my sleeping child brings with it incredible guilt. I feel like a bad mother who isn't savoring every moment of her precious toddler's life.

"These are the times to hold onto," the grandma's at the park say. "Enjoy every moment." I try, I really do.

"They grow up so fast ya know?" I know, I know. It's already been three years and like finishing a good novel too quickly, I long to return to that first page, when everything was new and tiny, when life smelled like powder and ointments. But also, like a good book, I can't wait to finish this chapter and start the next. I'm always looking forward to the new stage, when we lose the baby paraphernalia and travel light, when we can eat at restaurants again, and admittedly, guiltily, when it it is time for my three year old spitfire to sleep, to dream, to...leave me alone. I'm heartless, I know.

But no one tells you before becoming a parent that even when you are alone, there is a price to pay, a tariff of guilt, a tax of concern. A child has the amazing ability to suck the energy, focus, and parental life into them. It's an incredible survival skill, probably inherited from their nomadic ancestors, in an instinctual effort not be left behind. I can just picture Froggy in her deer hide diaper, running through a herd of buffalo screaming, "Wait for me! I get to be pack leader!" It's the only explanation I can conjure for why my toddler follows me from room to room, from kitchen to living room, from hallway to bathroom, and why when I ask her to give Mommy two minutes alone in the lu, she proudly bursts through the door, justifying her presence by saying, "I'M STANDING ON THE RUG," as if it were some one's job in the family to dutifully hold down the bathroom rug at all times, in case of an indoor hurricane or bathtub tsunami.

I recognize that when I try to lie down for a moment, and my little energetic sprite crawls on top of my head, for her it is actually a great compliment in toddler etiquette. She's saying, "I love you so much Mommy, that I must give you a purpose at all times. When you rest, you serve no purpose. So I'll make you a jungle gym, and climb your hair and swing from your arms, because you Mommy are important, and I've found a purpose for your superfluous parts."
I know I am a selfish being who would love to poop alone, to catch one episode of daytime television without a child screaming, "This isn't Dora!" I know the hands on the kiddo clock are moving much too quickly, and it is my duty, my obligation as a mother to savor every macaroni-necklace making moment, and that there will come a day when I catch an episode of Oprah without peaking through a diaper hat, and someday my husband and I will have a conversation that has a beginning, middle and end. I know that these are the days to hold onto, just like Billy Joel said.

I know that when I'm making coffee and my daughter asks, "Can I help?" I should be thrilled by her curiosity and enthusiasm for life, rather than lamenting the fact that by helping, she means scooping coffee grounds into every orifice of our kitchen tile and that I'll spend an hour and a half cleaning up a task that usually takes thirty seconds. Most of the time, I let her help make the coffee, feed the cats, water the plants, even though, those three simple tasks take all day. I kid you not, all day. Because toddler time is like stoner time. No body's in a hurry. We got all day, man.

My good mommy brain assures me that these are great lessons for her. Already at three, she can do laundry, dust the house, sweep the floors and send emails. She holds the leash when we walk the dog and she can work the DVD player, TV, microwave, and coffee grinder better than both her parents combined. She makes sure that she is part of every moment, a proud pupil, learning the details of domesticity, the social milieus on the playground, the discourse of our family life. She reminds me to smell the neighbor's roses, to dance when we hear music, to color waaay outside the lines and to find humor in anything smelly, loud or ridiculous. I do enjoy almost every second, I do try to make every day worth it, to remember her face like a snapshot when she collapses into hysterical giggles, to write down the funny things she says, to really exist in the moment, without thinking about the next. But I can't all the time.


Having a child has taught me strangely, that I need myself... a lot. Not in some new-agey, "I'm going to hike into the Alaskan wilderness to live on berries" sort of way. But I need me...alone. I believe as mothers and women there is a tremendous amount of guilt attached to wanting solitude. We are expected to appreciate the fact that we are needed, and if we don't appreciate that, we're not enjoying the "gift" of motherhood.

Here's an example of how I'm guilty of not embracing the "gift". FD has a habit, and I'll go out on a limb and call it a bad habit, because it drives me crazy...but he has the habit of telling Froggy thirty times a day to give Mommy a hug. It's sweet, I know. You're all thinking, "What is wrong with that adorable gesture?" Why, would this horrible woman be annoyed by her husband telling their child to show her mother affection? The answer is twofold. Usually this is a tactic for my husband to get alone-time for himself. By putting the toddler's focus on Mommy, he can escape into a magazine, or TV show. And when it isn't just an escape plan, I am usually busy doing something that I've finally found time to tackle, because Daddy's home! And I want the focus to stay on Daddy, so I can get my work done. When I give my husband "the look", the one that means, "Are you freakin' kidding me!" he says something like, "I love it when she hugs me, what is your problem?" Hmmm, my problem is that maybe I'm too in the moment to enjoy every moment. For parents whose kids aren't in daycare or preschool, the naps and snacks, potty time and "look at me tap dance on the kitchen table" moments are something to escape, rather than treasure. Not always, but sometimes.

We are both, my daughter and I, subject to evolutionary specialization, that biological need to keep our place in the tribe, and keep an eye on number one. While Froggy runs through the buffalo screaming, "Me too, me too," I'm focused on her, but also taking advantage of my peripheral vision, in case a mountain lion decides to make me lunch. Okay, maybe not a mountain lion, but exhaustion, or depression. I am trying, like so many mothers to find the place where my child ends and I begin, that tiny nook that separates us, like the hairline sliver of an umbilical cord. That space cannot be underestimated, or justified by guilt. It means that sometimes I lock myself in the bathroom to read in the tub, while Daddy does respiratory treatment. It means that sometimes I have to ignore my maternal instinct to be there all the time doing everything for everyone. And that is really hard. I was a person before I was a mommy, and I don't mind taking a backseat to my kiddo. But I do every now and again look in the rear view mirror, see my old self and say, "Good, you're still there."

I love my daughter more than I've ever loved anyone, but when the clock hits 8pm, it's lights out for the toddler and lights on for Mommy. Froggy is my world, but within that universe is a room of my own, without Lincoln Logs and Elmo, just a good book, a hot tub and a moment that I can hold onto and let go, without feeling guilty.

Sunday, October 12, 2008

Love from the Midwest


A mama from the midwest is running in a marathon to raise money for CF research. We've never met in person, and she's running 26 miles for our daughter (and all kiddos with CF). How incredible is that?

We met online through a parenting website because she was concerned that her daughter had CF. We emailed back and forth and I told her about Froggy, how we were diagnosed and what the signs and symptoms were for us. Fortunately, her babe did not test positive for CF and is beautiful and healthy. Even with their daughter's clean bill of health, they now raise awareness and funds for CF research through the Boomer Esiason Foundation.

I'm so overwhelmed by their generosity, I have no words.

Funny...but gross froggyism

I apologize for all the potty humor lately. We have a toddler, it's inevitable...

Because we live in an apartment, the kitty litter box is in the bathroom. Drives me bonkers to step out of the shower and have little kernels of litter on my feet. Ahhh, maybe someday we'll have a basement. Anyway...

This morning while brushing my teeth, Froggy pointed to a kitty poo in the box and said, "Look Mom, a sea otter!"

Monday, October 06, 2008

My Alma Mater helping the CF Cause!

Just in case you were confused as to which university in Iowa was superior...read this article.

Sorry Mom and Dad, I just don't see Iowa State making these advances. Bwaaaa Haaaa Haaaa!

Glad I chose the right college after all.

Saturday, October 04, 2008

What are the chances?


I often think about how random and statistically rare our lives are, since Froggy's diagnosis with CF, and then Epilepsy. It's hard not to ask the question: What are the chances?

But because there is some balance in this world... we also experience random kindness, and strange coincidences where it's hard again not to say: What are the chances?

The day before my sister left, we drove to Long Beach to visit the magnificent aquarium. We'd never been and Froggy (aka "Thrill seeker") had a blast petting sharks and stingrays.

After the aquarium, we walked around the marina and rested (because it as over 100 degrees!) by the carousel. A woman walks over to us, a familiar toddler on her hip and says, "Are you Froggymama?" She did not say, "Are you Elise?" She said, "Are you Froggymama?" After she said it, I recognized her. We read each other's blogs! Her daughter also has Cystic Fibrosis, and she is the only person, the only person I know who lives in the area, and we just happened to bump into each other, on the one random day we decide to go to the aquarium. What are the chances?

We were both careful to keep our kiddos apart. People with CF can not be around one another because of cross-contamination of lung bugs, which is another crappy aspect of CF. The only community we have is online.

I just can't believe the randomness of life. Or maybe not so random, maybe it is directed - like a reality show that's scripted. Sorry bad analogy. Anyway, I'm still in awe of how our life unfolds. If you'd like to check out the cutie pie and her mama, visit their blog
HERE.

Friday, October 03, 2008

I can't believe I'm sharing...

This definitely qualifies as 'too much information' but it needs to be recorded in Froggy history...

Today while picking up meds at the pharmacy, I had to use the restroom. Our local Rite Aid has the most disgusting bathroom I've ever been in, worse than an outhouse, worse than a public park, or carnival port-o-potty. It is filthy. I'll leave out the details, but it's what I imagine a medieval toilet to resemble. So before entering, I told Froggy, "Do NOT touch anything!" I actually had my anti-bacterial gel out, like a light sabre, ready to attack any mega germs that leapt our way. In the stall, there were no toilet covers (of course, because only clean restrooms have those), so I did what any sane woman does in a situation like this. Oh you know... "The Squat." It's not the prettiest pose, but the lesser of two evils. So the toddler is watching me with bizarre fascination, and says, "What are you doing Mama?"

Before I could muster up a good explanation, she answers for me...

"Peeing... like a cow."

Moo.

Wednesday, October 01, 2008

Couple ends marriage for health reasons

Read this article.

FD and I have actually discussed this option. Hopefully, it will never come to this.

When FD starts working in June, we will lose CA. Children's Services and Medicare for Froggy.

Without that help, even with his income, we may not be able to afford the high co-pays for her meds. The average cost of medication alone for a kiddo with CF is more than $65,000 a year. So think about that, even a small percentage of $65,000 would wipe us out.

We have no idea yet how her medical coverage will be, so I'm jumping the gun. But obviously, we'll do whatever it takes to get Froggy the best care, without us living in a van down by the river.

Monday, September 29, 2008

Good Times




My sis has been here almost a week. It's been WONDERFUL and I think I'm going to accidentally have my car break down on the way to the airport, and then keep her forever in our apartment, like Dabney Coleman in the movie, "9-5". Okay, I guess she can go home to her husband and adorable dog, Ruby, but it will be tough. She does dishes, changes poop diapers, cooks, makes me laugh, treats my daughter like her own, and knows me better than anyone. I LOVE my sister. She's my best friend and I can't believe we live 2,000 miles away.

I believe that we have many soul mates in our life, some chosen, some appointed. My sister is both. I care about her opinion more than anyone, not only because she's brilliant, but because we shared a womb, and she is the first person I call with the good news and the bad. She was the first to know I was pregnant and the first to know that Froggy had CF (beside FD). She's the most kind and considerate person, as a social worker - she spends her days and sometimes nights making sure that people are taking their meds, and not taking their lives. She's better than me, and the person I will always look up to. She's my big sis, and even though she stole my cupie doll, and wouldn't play with me unless I let her be Malibu Barbie, and I had to be the ratty old Skipper doll, I can't imagine my life without her. And yes, twenty five years later, I forgive her for the Malibu Barbie incident...kind of.

Elaborating: For my seventh birthday, I received a Malibu Barbie. Elated, I asked my sister to play barbies with me. She of course, said, "No!" After a few seconds she recanted and said, "Okay, I'll play with you...but I get to be Malibu Barbie." Like an idiot, I agreed. I was desperate to have my big sis be my friend, even if it meant giving up my new toy. I think all little siblings can relate. She is no longer selfish and conniving, but I've never let her forget it. So okay...sissy...I will finally let it go. You can be Malibu Barbie, and I'll be ugly old Skipper with the flat chest and bad tan. If only, you'll play with me!



Sunday, September 28, 2008

Auntie Honka


My sister, Auntie Honka is here. We're having such a wonderful time, I've been to busy to blog. Froggy is in heaven. And so am I.

Monday, September 22, 2008

California Dreamin'

I heard Froggy stirring after her nap today, so I peaked my head into her room.

She was tossing and turning saying...


Froggy: Bills, bills, bills!

Note to Froggymama Self...keep financial woes quiet, the little tadpole is listening.

I loved...


this book, "The Shadow of the Wind," by Carlos Ruiz Zafon. It's the kind of novel where you walk through the house, picking up toys in one hand, holding the book in the other. I read it at stop lights, in the tub, during Froggy's treatments, and was satisfyingly crushed when I'd reached the last page. If you're a fan of Gabriel Garcia Marquez, you'll love, love, love this!

Saturday, September 20, 2008

Confucius Froggy says...





A froggy doesn't have ears. (long pause) A rabbit has ears. I have ears. I'm a rabbit. Hippity hop.

While driving, Froggy is busy looking out the window


Froggy: That's bamboo. Panda bears live in bamboo.

Froggymama: Do they eat the bamboo too?

Froggy: Noooooo! That's silly.

While reading my book Froggy said:


Froggy: Can I read your book?

FM: Sure.

Froggy takes the book and very seriously opens to the middle. She studies the text and says...

Froggy: I love Cauliflower. Cauliflower.

FM: Is the book about cauliflower?

Froggy: Yes.


FM: What happens in the story?

Froggy: The cauliflowers falls off the table.

FM: Then what?

Froggy: It's on the floor.

FM: Do you eat it?

Froggy: No.


FM: Why not?

Froggy: Because cauliflower has a nose, and eyelashes, and a chin. I won't eat it.

FM: I see.

She's obviously a very confused vegetarian!

Froggy is interested in pretend vs. real. For example...

While playing with her toy car, she comes up to me and says...

Froggy: Vroom vrooom. (pause) It's not a real car mom.

Or...


Froggymama: Let's give your baby a bottle.

FM gives the babydoll a bottle, while Froggy studies the situation.

Froggy takes the doll away from Froggymama.


Froggy: (like her mom is a total moron) It's not a real baby mom.

And some more funny Froggyisms....


Froggy calls the carport, the car airport.

She calls sea shells -- she shells.

We found a rabbit on Friday, a pet, someone must have lost in the neighborhood. So we kept him in our bathroom for a couple days until we could find a home for the little guy. Froggy, without prompting, named him Hippity. As in...hippity, hoppity.

Sailing with Sissy





















Last weekend, we celebrated Grandma W's birthday on their sailboat. Sissy Snuggiekins and Froggy found a starfish and fed him mussels...whether he was hungry or not. It could not have been a more beautiful day. And the highlight was when Grandpa "J" played the trumpet and woke up the sleeping sea lions. They weren't amused...but we were.

Conservatives for Obama

I've been too tired to post...but still read my favorite blogs.

My friend
Casey posted this great article about a conservative voting for Obama. It's an interesting read and hard to stay away from politics with the election so near.

Wednesday, September 17, 2008

Friday, September 12, 2008

The Birthday of a Little Frog

I fell asleep in my Abby Cadabby costume. But I took my wings off first.



You woke me up. So where's the party?


My GREEN PRESENT I requested!

Thanks Grandma W.


Hey, this costume is itchy. Take it off, Mom!

Are you ready to party Hummingbird?


Hey, why is there a big gorilla at my birthday party?


Hummingbird holding onto her Daddy!

The Bub and his gorgeously glowing Mama.


The Bee Man and his mama.


FD and the Frog watching the Birthday Gorilla.


Hummingbird's Mama and "J"


Oh wait, he's not scary....he's a nice gorilla, and even a little shy.

Hummingbird is thrilled, but still holding on tight to her daddy.



Froggy the fearless.


Yeah, we can be friends.

Peek a hoooo hooo hooo.


A present from the gorilla.



Hey, what's Grandpa doing inside a gorilla?


Seriously?

That's just wrong.


"Yes, I know, my Dad is freakishly tall, and my mother freakishly short. Hope I'm normal!"

Froggy and the Bee Man climbing.

After the park, we walked to our humble abode.


We crammed a lot of people in a tiny apartment.


A friend from my on-line parenting group made this cake for Froggy.

It was her "present" to the Frog. And what a delicious present it was.


Balloons!

Enzymes before cake.

...And many more!!!

Hooray!

You're gonna share, right?

Froggy eating a froggy. She ate the legs first.


I think Hummingbird wanted a hummingbird cake.



Playing dress-up with new toys!