A Major Bummer

Our Pulmonologist called today and said that Froggy's lung culture tested positive for Pseudomonas. This is one of the nasty bacterias we've tried to avoid with airway clearance, but you can't always prevent it.

The good news is that with the inhaled antibiotics, as well as an oral, they can usually eradicate Pseudomonas. And the doc said that Froggy only cultured a small amount. So the little critters haven't completely set up shop.

The bad news is that we will add another 45 minute nebulizer treatment 2 times a day for the next two months. After those two months, we'll do the inhaled antibiotic every other month (2x's daily as well).

I'm bummed and I'm not sure how in the world we are going to do this. With treatments, nap, meals, and my job, it just seems impossible. But everything at first seems impossible. Then you get a routine and realize it's not so bad.

We also had an appointment with Froggy's neurologist today because her meds aren't controlling her seizures. She suggested we increase her dosage to the max, and if that doesn't work, we'll switch to a new med.

Fun, fun. To take a look at Froggy, you would NEVER know anything is physically askew. She's the most energetic and happy kid, and even with the myriad of treatments and meds, life is just plain normal to her. What a trooper.