I wrote the 'year end' letter for the CF Foundation (in S. CA). You can click on it to read. I combined some of the 'Sun Submission' piece, so if it feels a little deja vu, that's why.
That is so well written. I understood every feeling you were describing, and then when you began, "Every year without a cure..." I started to weep! You just said everything so perfectly. We'll be starting our fundraising for Great Strides by Feb, and if you don't mind I would love to direct people to your letter.
Your deserve to pat yourself on the back for such a beautiful letter! Do you mind if I start every conversation about my friend FroggyMama with 'Oh puh-lease! She may be famous and amazing NOW, but I knew her all the way back in the days of 7am Drama Club meetings and boyfriend-stealing pixies.' :-)
Thank you for writing such a wonderful letter. My daughter has Cystic Fibrosis too. My wish is what we all wish for.... more time and a cure.From another CF mom... Blessings to you and your family. Leslie.. Jessica's Mom.
Alicia, yes please do use the letter. We're making a couple changes, and in the actual letter that gets sent out, we'll have a url for people to donate to...but of course you can direct them to your Great Strides post or your local CFF branch. Send me your email address and when the finished letter is ready, I'll email it to you! Thanks!
Dutchmac, Yes of course you may begin every sentence that way, whether or not you're even talking about me, just in day to day conversation with the post man, even. Please spread the word that I'm wonderful. :) And I just flashed back to 7am drama club meetings and remember that I was usually very late, cruising in around 7:30 or so, with some terribly bad for me junk food breakfast like a coca cola and cookies. And I was only 97 pounds. Ugh, to be able to eat 4000 calories a day and still be skinny. Gone are those days. But still late everywhere I go. And hey, member our ex-boyfriend drive-by's. Man we were sick. Like a bad Lifetime movie. I gotta say there was something sadistically fun about teen angst, where all problems are eventually solved over fried cheese sticks, a tub of marinara and a coke. Good times. Did I mention we could eat that crap and still weigh nothin?
8 comments:
What a great letter, Elise! Froggy is lucky to have such a great momma. :)
What I read those words "Your Daughter has cystic fibrosis," it just brings all those memories to the surface, and the tears come.
When they're little and healthy, it is just so hard to imagine what it might be like in the years to come.
I hope that your letter is used mightily to speak and get donations to the foundation.
That is so well written. I understood every feeling you were describing, and then when you began, "Every year without a cure..." I started to weep! You just said everything so perfectly. We'll be starting our fundraising for Great Strides by Feb, and if you don't mind I would love to direct people to your letter.
Your deserve to pat yourself on the back for such a beautiful letter! Do you mind if I start every conversation about my friend FroggyMama with 'Oh puh-lease! She may be famous and amazing NOW, but I knew her all the way back in the days of 7am Drama Club meetings and boyfriend-stealing pixies.' :-)
Much love to all from across the pond!
xoxoxoxo
Thank you for writing such a wonderful letter. My daughter has Cystic Fibrosis too. My wish is what we all wish for.... more time and a cure.From another CF mom... Blessings to you and your family. Leslie.. Jessica's Mom.
Thank you everyone.
Alicia, yes please do use the letter. We're making a couple changes, and in the actual letter that gets sent out, we'll have a url for people to donate to...but of course you can direct them to your Great Strides post or your local CFF branch. Send me your email address and when the finished letter is ready, I'll email it to you! Thanks!
Dutchmac, Yes of course you may begin every sentence that way, whether or not you're even talking about me, just in day to day conversation with the post man, even. Please spread the word that I'm wonderful. :) And I just flashed back to 7am drama club meetings and remember that I was usually very late, cruising in around 7:30 or so, with some terribly bad for me junk food breakfast like a coca cola and cookies. And I was only 97 pounds. Ugh, to be able to eat 4000 calories a day and still be skinny. Gone are those days. But still late everywhere I go. And hey, member our ex-boyfriend drive-by's. Man we were sick. Like a bad Lifetime movie. I gotta say there was something sadistically fun about teen angst, where all problems are eventually solved over fried cheese sticks, a tub of marinara and a coke. Good times. Did I mention we could eat that crap and still weigh nothin?
It is absolutely perfect! I'm so glad they had you do this. You are an amazing writer!
*sigh* It is time to start thinking about fundraising, again, isn't it?
This was beautifully written. Thank you for doing it for ALL of our CF kids.
tami
mom to Emily 3 w/cf and an attitude
Post a Comment